Monday, January 10, 2011

A Ray of Sunshine

If Friday was a glimmer then today we have a ray of sunshine.

Josh has been sleeping slightly better at night 4-5 hours straight.  This is amazing, considering for months the best he has had is 2 hours straight.
Josh has still not had a breast feed since Friday morning (before the SALT).  He has had a few ounces of breast milk as I've been expressing but he has had it all from the bottle.  I am a little concerned about the amount of fluid he is taking but he is have slightly wet nappies, he isn't lethargic and he is eating his jars very well.  Dave said I should stop panicking.
Josh's tone has not been as increased as previously.  He does still get frustrated and extends through his back and legs but not as frequently.

Joshua had to have that awful Electro Physiology test today.  It takes 2 hours and he has to have contacts placed all over his head.  It's not very pleasant for him.  I was pleased though, because a couple of times he purposefully swiped the contacts from his brow, much to the technicians dismay.  It was great to see him do something with meaning.

In relation to the test, I'm not expecting any changes just yet but I hope that with the light treatment and Great Ormond Street Hospital Visual Development Clinic that things will slowly change.

1 comment:

HyperCRYPTICal said...

Excellent news re Josh! Sleeping better and taking fluids from a bottle!

Dave's right - stop panicking! Have SALT suggested giving him extra fluids in food - such as jellies and custards? Check it out with them first - but it is a good way to increase fluids.

He (Josh) is lovely!

Anna :o]