A Ray of Sunshine

If Friday was a glimmer then today we have a ray of sunshine.

Sleep
Josh has been sleeping slightly better at night 4-5 hours straight.  This is amazing, considering for months the best he has had is 2 hours straight.
Feeding
Josh has still not had a breast feed since Friday morning (before the SALT).  He has had a few ounces of breast milk as I've been expressing but he has had it all from the bottle.  I am a little concerned about the amount of fluid he is taking but he is have slightly wet nappies, he isn't lethargic and he is eating his jars very well.  Dave said I should stop panicking.
Physio
Josh's tone has not been as increased as previously.  He does still get frustrated and extends through his back and legs but not as frequently.

Joshua had to have that awful Electro Physiology test today.  It takes 2 hours and he has to have contacts placed all over his head.  It's not very pleasant for him.  I was pleased though, because a couple of times he purposefully swiped the contacts from his brow, much to the technicians dismay.  It was great to see him do something with meaning.

In relation to the test, I'm not expecting any changes just yet but I hope that with the light treatment and Great Ormond Street Hospital Visual Development Clinic that things will slowly change.

VEP Test

Josh is still not fixing and following.  The ophthalmologist referred him to Moorfields Eye Hospital to have VEP tests carried out.  Contacts were placed on Joshua's head and a light flashed in front of his eyes at varying speeds.  The contacts should read whether his brain is receiving the images from the eyes.  However, like everything else, no results today, we have to wait to see the Ophthalmologist at Royal London.  Come on! Really! More "Wait and See".  

Opthamology... again

We haven't been looking forward to this week. But we better get it over and done with.

Joshua had opthamology again today. We went expecting to find out whether his eyes were sending messages to his brain. But came home with the same answer, wait and see. Wait and see, wait and see. That's all they ever say. Surely with all your advanced science, your tests, your knowledge you can give us something more than wait and see? No? Thought not!

We can still cling onto the hope that he may have developmental delays in his eyes.